We are home.

Back from the PICU as of about 4. It's great to be home, but weird too. This is the first time they have sent us home and said, "medically there is nothing else we can do." So, we are home with Ava. She is not feeling bad. Just sleepy on and off. She nods a lot and gives thumbs up for approval. She is not concerned right now as far as I can tell.

It's nuts. 10 weeks ago Ava was running around playing with her cousins. Right now, she is 3 brain surgeries in and has been given very little time left by the medical professionals. It's very clear to us that we need miraculous healing. We've needed it all along. The biggest difference is I thought this part would come in 18 months, not 2. We are wrestling through it as any parent would. We wonder what in the world God is doing. We wonder what in the world we could have done different. We wonder what in the world. All we know is that God is big and mighty. There is nothing He cannot do. The tough part of that is there are some things He won't do this side of heaven. We just keep praying that healing Ava is not one of them.

Our family is around us all the time and has been wonderful through this confusing and eternally quick time. We have some of the therapy items that we were headed to New Jersey for in route already. Her therapy at home starts tomorrow. We hope to get her well enough to travel, but right now we really aren't close.

Keep praying for Ava. Keep praying for us. I am not ashamed to ask...we need your prayers.