The last 72 hours

Well, what in the world? I woke up Saturday morning to a daughter who was goofing around with me as I tickled her. It is Monday morning as I sit next to the bed of a 5 year old brain cancer patient, who is 1 day post op (after having a tangerine sized tumor removed). The crazy thing is they are the same person.

My mind can't process all of this right now. I spend a good amount of time hopeful, discouraged, furious, and grateful. I'm not happy. But, I'm not non-functional either...that is weird to me. I always wondered how I would handle true crisis. The truth is, it's the same way I handle little crisis. The feelings are just more powerful.

Ava is doing well. The part of her brain where the tumor was removed controlled fine motor movement of her left side. So, right now she can only use her right side. They say the damage is mostly superficial and they feel good about long term use and re-strengthening of her fine motor skills on the left side. She is currently just sleeping a lot. She told me she loved me this morning and it took everything I had to not burst into tears. She will be in various states of sleep and therapy for the next few days.

The oncologist will be talking to us today. They believe that we will know for sure what type of tumor it was either today or tomorrow. That is good, I guess. We can't do much for a couple weeks until Ava heals anyway, so knowing what type it is will just let us get better educated.

I saw the post op MRI this morning. They got the big mass out, but there is a little residual that we'll have to take out with Chemo or whatever therapy works best.

It's been an insane couple days. We expect a long battle ahead, but we are grateful for all of the friends, messages, support and prayers from all over the world.

I'll post more on here in the days ahead... In the meantime, I have to stay on track to open Hunter Vision. Pray that I ride that line well.